|Parents :: Web Links and Downloads
The sites listed here provide a wealth of information and resources related to FASD. The Comprehensive Resources offer a broad selection of information on publications, organizations, diagnostic/treatment centers, education, advocacy, and support materials. More specifically focused information can be found in the Prevention/Treatment, Diagnostic/Treatment Centers, Policy and Advocacy, Support Groups, and Camps sections.
- SAMHSA FASD Center
Information and resources from the Substance Abuse and Mental Health Services Administration in the Department of Health and Human Services.
- National Center for Birth Defects and Developmental Disabilities (NCBDDD)
Information, resources, and initiatives from the Centers for Disease Control and Prevention (CDC).
- National Institute on Alcohol Abuse and Alcoholism (NIAAA)
Information and resources from the National Institutes of Health. Type "FASD" into the search box to get information specific to FASD.
An international non-profit organization, the National Organization on Fetal Alcohol Syndrome is committed to prevention, advocacy and support.
- FASlink: Fetal Alcohol Disorders Society
An Internet research, support, information, advocacy, and worldwide discussion forum. The site has more than 110,000 FASD related documents online.
Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc. seeks to increase understanding and develop effective parenting and professional techniques.
The mission of the FAS Family Resource Institute is to identify, understand, and care for each person with FASD.
- The ARC
A national organization of and for people with mental retardation and related developmental disabilities and their families. FASD is a topic in the Information link.
- University of Washington Fetal Alcohol and Drug Unit
A research unit dedicated to the prevention, intervention and treatment of Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE).
- Stone Soup Group
An organization that works to sustain the health and well-being of Alaskan children with special health care needs and their families. Includes a section for FASD.
The Family Empowerment Network is a resource, referral, support, and research program that seeks to empower families affected by FASD through education and support.
- FAS Community Resource Center
This colorful site is a bit difficult to navigate, but it is packed full of resources â€“ from research articles to parenting tips to posters and handouts for downloading.
- National Toxicology Program
Information on alcohol, pregnancy, and the health of unborn children and infants, from the Center for the Evaluation of Risks to Human Reproduction (CERHR).
Quarterly international educational newsletter on FASD published by FASIS (Fetal Alcohol Syndrome Information Service).
A cornucopia of learning products and activities for children with special needs. Explore the links under the gold "Disabilities" tab.
- FAS Bookshelf Inc.
An Internet and mail order business committed to providing a range of resources on Fetal Alcohol Syndrome.
- Northrop Grumman
A Center for Excellence Project on Fetal Alcohol Spectrum Disorders. Provides information on 18 local community and 9 state prevention and/or treatment programs.
- Families Moving Forward Project
An innovative intervention model to address the needs of children with FASD, their parents, and the school and community professionals who work with them.
- Renfrew Educational Services
Direct and/or consultative support provided by a team of developmental pediatricians, psychologists, occupational therapists, and speech-language pathologists.
- Resource Center for Parents and Children (RCPC)
Information, education, and support for the promotion of healthy families. Includes programs and services for FASD.
- FASD Connections
Services for adolescents and adults with FASD. Click the "services" link for information on training courses, consultations, and individual strategy sessions.
- Occupational and Physical Therapy
Fact sheet from Minnesota Adoption Support and Preservation on the benefits of OT and PT for children with FASD.
- Fetal Alcohol Syndrome Handbook
Text by Dr. Larry Burd to provide information that will be immediately useful to parents and teachers; includes information on educational, behavioral, and medical interventions.
The following are examples of state-based programs. This list is not exclusive. Let us know if you need help finding information on diagnostic/treatment centers in your state.
- FAS Diagnostic and Prevention Network
Originating in Washington State, this network of community-based clinics has expanded nationally and internationally through the training of interdisciplinary teams.
- The Marcus Institute
Diagnosis, therapy, and care management for a wide range of disabilities and learning problems, including FAS.
- Cottonwood Treatment Center
Diagnostic services, treatment programs, and residential living options for adolescents with Fetal Alcohol and other disorders.
Policy and Advocacy
- School Services for Children with Special Needs
What parents need to know about the Individuals with Disabilities Education Act (IDEA), Section 504 of the Rehabilitation Act, and the Americans with Disabilities Act.
- IDEA 2004 News
News, information and resources on IDEA from the U.S. Department of Education. (Note - IDEA was originally called Public Law 94-142: Education of All Handicapped Children Act.)
- Families and Advocates Partnership for Education (FAPE)
Links families and advocates to information about IDEA. Includes changes in IDEA 2004 related to the IEP process, due process, and the discipline provisions.
- The Individualized Education Planning Team
Information on who attends IEP meetings, what should be included in an IEP, and parents' rights concerning the IEP team and meetings.
- Advocating for the FASD Student
Outline and tips for what to do and who to contact â€“ written by the mother of an adopted son with FASD.
- No Child Left Behind (NCLB)
EVERY thing (and more!) you need to know about NCLB, from the U.S. Department of Education. See the Teachers Toolkit and Parents Guide.
- NOFAS Action Center
Access policy initiatives related to FASD. Review NOFAS' current legislative priorities and policy statements. Be an advocate and take action!
- Pending Legislation
The Advancing FASD Research, Prevention, and Services Act. Includes information on how to write your senators and representatives requesting support of the legislation.
Information about special education law, education law, and advocacy for children with disabilities.
- Bazelton Center for Mental Health Law
The nation's leading legal advocate for people with mental disabilities. Their work is based on the principle that every individual is entitled to choice and dignity.
- University of Washington School of Medicine
Lists of parent support groups in the United States, Canada, and other International locations.
An international alliance of parents and professionals dedicated to the significant reduction of the incidence of FASD. A list of community support groups is provided. If there is no support group listed for your community, they will help you get one started. Also provided are guidelines for making your support group great.
- NOFAS Washington State
The Washington State Affiliate of the National Organization on Fetal Alcohol Syndrome provides mini trainings to families on a variety of topics through FASt Friends: A FASD Family and Community Support Network.
- Double Arc (Ohio Affiliate of NOFAS)
Support includes a six-week series of classes to provide parents with the information and tools they need to effectively work with their child with FASD.
A Canadian organization devoted to providing support for grandparents and family members who are raising extended family members, many of whom have special needs.
- FASlink Internet Discussion Forum
Subscribe to post and read messages from other parents and professionals who deal with Fetal Alcohol Spectrum Disorders.
- Special Needs Camps in Minnesota
An extensive list of camp opportunities for children with special needs. See "Camp Friends" and "PRC Day Camp" for camps specific to children with FASD. Several other camps may also be viable options.
- FASD Family Summer Camp (Washington state)
Sponsored by NOFAS Washington, this 5 day camp for families focuses on strengthening and empowering children with FASD and their families and increasing their capacity to succeed.
- Stepping Out on Saturdays (Calgary, Canada)
This full day camp sponsored by Renfrew Educational Services offers children fun opportunities to make friends and to learn important social, self-regulation, and problem-solving skills and strategies.
- FAScinating Family Camp
This Volunteers of America Alaska camp seeks to provide a "normal" camp experience for children who might otherwise be treated as "different." It also provides opportunities for parents to network. Onsite instruction and Continuing Education credit is available.